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Joint Engagement in Children With FXS (Hahn et al., 2016) ...
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Joint Engagement in Children With FXS (Hahn et al., 2016) ...
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Predicting progress in word learning for children with autism and minimal verbal skills
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In: J Neurodev Disord (2021)
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Developmental Trajectory of Communication Repair in Children with Fragile X Syndrome
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In: Autism Dev Lang Impair (2020)
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Communication in Young Children with Fragile X Syndrome: A Qualitative Study of Mothers’ Perspectives
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Abstract:
Purpose: The purposes of the study were to provide descriptive and qualitative information about communication in young children with fragile X syndrome (FXS) and about how families react to and accommodate communication differences in their children. Method: In-depth interviews were conducted with 55 mothers of young children with FXS. Interviewers asked mothers to describe their children’s communication, strategies they used to help promote their children’s communication, communication-related frustrations, their expectations for their children and the roles that they perceive for themselves. Results: Over half the children were nonverbal and learning to communicate with augmentative or alternative communication (AAC). Mothers reported using strategies that were developmentally appropriate and recommended by early childhood experts, such as reading and talking to their children. Many mothers identified challenges faced in helping their child to communicate, and some cited difficulty obtaining speech-language services as a challenge. Mothers identified their roles as caregiver, teacher, therapist and advocate. Conclusions: The perspectives offered by mothers are valuable because they indicate how children with FXS communicate in natural contexts. Information about mothers’ expectations and roles may help clinicians to be sensitive to variables that will impact working with young children and their families. ; NIH P30 HD003110-38S1 ; NIH P30 HD02528
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Keyword:
Communication disorders; Fragile X; Parents; Preschool children; Qualitative research analysis
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URL: http://hdl.handle.net/1808/30795
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Developmental trajectory of communication repair in children with Fragile X Syndrome
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Communicative Use of Triadic Eye Gaze in Children With Down Syndrome, Autism Spectrum Disorder, and Other Intellectual and Developmental Disabilities
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In: Am J Speech Lang Pathol (2019)
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Alternative Receptive Language Assessment Modalities and Stimuli for Children with ASD who are Minimally Verbal
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Comparing the Effects of Speech-Generating Device Display Organization on Symbol Comprehension and Use by Three Children With Developmental Delays
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In: Am J Speech Lang Pathol (2017)
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Symbolic Play of Preschoolers with Severe Communication Impairments with Autism and Other Developmental Delays: More Similarities than Differences
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Impact of Alternative & Augmentative Communication on the Utterance Length of Children with Limited Oral Language
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Interactive Book Reading to Accelerate Word Learning in Bilingual Children with Specific Language Impairment
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Word Learning in Children with Specific Language Impairment: Influence of Child and Word Characteristics
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The Role of Maternal Gesture Use in Speech Use by Children with Fragile X Syndrome
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Relationships Between Early Gestures and Later Language in Children With Fragile X Syndrome
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Reading Instruction for Children who use AAC: Considerations in the Pursuit of Generalizable Results
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The effect of sustained maternal responsivity on later vocabulary development in children with Fragile X Syndrome
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